ME/CFS is a spectrum illness with people having different levels of symptoms and functionality. People with ME/CFS can move on the spectrum over the course of days/weeks/months/years.
Whilst symptoms and severity vary for every individual with ME/CFS, a broad categorisation can be made as follows:
Are able to care for themselves but may need some support in domestic activities
May be able to work, but only at the expense of other activities
Have reduced mobility and are restricted in all areas of daily living.
Likely to have given up work or education
Need rest periods throughout the day
Unable to carry out all but the most minimal daily tasks
Mostly bed bound
Hypersensitivity to light/sound/smell/touch
Severe cognitive difficulty
Fully bed bound
May struggle to communicate
May need nutritional support (tube fed)
CAN BE FATAL