ME/CFS Organisations, Education and Information
The ME Association – A UK based charity providing advice and support to people with ME/CFS. They offer a range of informational leaflets about various aspects of ME/CFS, publish news on research and development, and run a telephone support line.
Action for ME – A UK based charity supporting adults and children with ME/CFS. They provide advice, advocacy services, healthcare, and a telephone support service.
ME Action – A global network of advocates and affiliates for ME/CFS.
Dialogues for a neglected illness – This is a project funded by the Wellcome Public Engagement Fund which produced a number of films reflecting ME/CFS. It explores aspects of the disease from the perspectives of doctors, researchers, patients, carers, advocates and MPs
Healthcare
NICE Guidelines on ME/CFS – The National Institue for Health and Care Excellence (NICE) published updated guidelines in October 2021 for the diagnosis and management of ME/CFS. These outline the standard of care that all patients with suspected or diagnosed ME/CFS should receive in England.
Benefits and Social Care
Government Benefits – Home page for UK government benefit information and claims.
Turn2Us – UK based charity offering information and support for benefit claims.
Fightback4Justice – UK based non profit Community Interest Company (CIC) offering information and support for benefit claims.
NHS Social Care and Support – Information on Social Care and Support from the NHS
Carers Trust – UK based charity offering information and support to unpaid carers
Carers UK – UK based charity offering information and support to unpaid carers
Travel
Disabled Persons Railcard – Apply for a disabled persons railcard to receive discounts on rail travel
Network Rail Assisted Travel – Information on how to access the assisted travel for elderly and disabled passengers on the UK rail network
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