You can find the latest news, events, and activities from KCIMESG by following our social media accounts below.
As well as our Facebook, Twitter and Instagram pages, we also have 2 Facebook groups.
A private peer support group for people with ME/CFS or Long Covid to chat, ask questions, and swap tips, ideas, and stories.
A public awareness group Learn About ME for anyone to see general news, research, and articles about ME/CFS and Long Covid.
Facebook Page Feed
A gentle reminder that it's the Huddersfield coffee meet-up this Tuesday, 7 November, at Hive in Huddersfield. We'll be there from 1.30-3.30 for cake, coffee and a natter – whether that's ME-related chat or not, that's up to you! To be fair, if you prefer soup, a buddha bowl or a vegan sausage roll to cake, that's also up to you!![]()
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Hive is at 46 John William Street, Huddersfield, HD1 1ER. That's just across from the train station in St George's Square. There's also on-street parking on John William Street and the surrounding streets, and town centre bus stops are close by.![]()
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We can't wait to see you!
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The dates for our remaining meet ups in 2023 are now confirmed.![]()
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Hudds – Tues 7th Nov / Tues 5th Dec 1.30pm-3.30pm![]()
Haliax – Tues 17th Oct / Tues 21st Nov / Tues 19th Dec 11am-1pm![]()
Dewsbury – Tues 21st Nov 11am-1pm![]()
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The Halifax meet on 19th December will be a chance to get together for a Christmas meal, further details will be released soon!
The Autumn edition of our newsletter has gone out to members. ![]()
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If you're not a member of KCIMESG and would like to receive a copy then please join up via our website![]()
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BECOME A MEMBER OF KCIMESG – KCIMESG
kcimesg.co.uk
Membership is open to anyone who has ME/CFS, PVFS, or Long Covid. You can also join us if you do not have a diagnosis but suspect that you might have one of these conditions. We also welcome all famil…
The Department for Health and Social Care (DHSC) yesterday released its long awaited "Delivery Plan for ME/CFS".![]()
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www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delive…![]()
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This is an interim version with a consultation period for any individuals or organisations to provide feedback before the final plan is published.![]()
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The consultation period runs until 4th October 23.![]()
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We understand that accessibility issues with the document and survey for those with ME/CFS have been raised with the DHSC by the patient community and we await to see any changes.![]()
As one option, Action For ME have released an audio version![]()
soundcloud.com/actionformeaudio![]()
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The KCIMESG committee are reviewing the document and will be discussing it in our next committee meeting. We will provide further response after that.![]()
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If anyone needs any advice or support in accessing the plan or responding on their own behalf then please get in touch.
Improving the experiences of people with ME/CFS: interim delivery plan
www.gov.uk
We're seeking your views on an interim delivery plan to improve the experiences and outcomes of people with myalgic encephalomyelitis/chronic fatigue syndrome.
Today (8th August) is Severe ME Day.![]()
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We think of us who are severely affected, living in isolation from the world. We also remember those who are sadly no longer with us.![]()
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For those with severe #MECFS malnutrition can be a very real risk and tube feeding may be needed.![]()
More education of medical professionals is needed to support those in this situation.![]()
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25% of people with ME/CFS are severely affected. ![]()
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If you need advice or help with severe ME/CFS you can contact the 25% group for specialist support: 25megroup.org/![]()
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#MEAwareness #SevereME